Missing Brooklynn

So I took up an offer to come home to Logan with Shaun this morning. We were planning on staying one more day but I miss my baby to much. My dad is also planning on coming around 2pm to see her at the hospital so I want to be there. Lydia is coming as well.

Brooklynn is doing well. She now weighs 4lbs 9oz as of today. She is still eating from a feeding tube continuously. This leads to her never being hungery which means she hasn't learned to breastfeed or eat from a bottle. She has breastfeed alteast twice but not all the time. I think she does this when ever she feels like a snack but not for a meal. She also has reflex (throws up) which makes her stop breathing in order to save her lungs and probably her burning throat. They started putting simply thick in my breastmilk again to help her keep her food down. Her oxygen level is down. She's on room air which is 21%. When she stops breathing they'll give her more oxygen so they keep it on her. She was on room air most of the day yesterday but still needs it.

So if Brooklynn can learn to breastfeed or take a bottle and remember to breath or stop hold her breath, she can come home. The oxygen and reflex are ok to have at home. She has made a ton of progress and is gaining weight like crazy lately. 5 oz in the past two days.

I do miss her though so I'm going back to Brigham tonight when Shaun is off work at 11pm.

We love you Baby Brooklynn. See you tomorrow at 11am!

Brooklynn has been having a hard time remembering to breath which means her oxygen level is to low or not stable. In order to help her remember to breath they have given her caffiene. They took her off of this because they thought maybe it was upsetting her tummy since she is throwing up alot.

Well, they took her off the caffiene but she is showing signs of forgetting to breath again so this morning while we visited, the doctors told us they were going to put her back on it.

Brooklynn has also had some blood work done today to see if they could see if she is sick from something else. Her labs came back good so she's not sick from whatever they were testing for.

Today she weighs 3lbs 15oz

Update

Brooklynn was finally able to meet her Grandma and Grandpa Moyes. My dad was sick and not able to come visit. She slept and smiled alot.

I am starting to teach her to breastfeed. Right now she is only eating through the feeding tube through her nose. She's progressing well.

As of today she weighs 3lbs 10 oz.

Correction

Brooklynn was born 39 cm long which is 15.5 inches.
So that means she has grown half an inch!

She was also 3lbs but lost 5ozs and gained10oz so
now she is 3lbs 5ozs as of Jan 7 2009.

She's off her IV and on the lowest amount of oxygen
you can give.

Brooklynn needs to learn to eat and keep her own
body temperature.

In other words. She is doing really well.

3lbs 5oz 16inches Jan 7 2008

Her big tuff daddy update

Brooklynn is doing really well! She once upon a time had a heart mummer, but that is history!!!!!! At least the doc thinks so. They are going to do an eco of her heart to confirm that. If all is well, then they are going to see what they can do about getting her transfered to Logan. Her first car ride will be in an ambulance if that is the case. We are praying for that she can come to Logan so our sweet family can be reunited in their love shack, or in Brooklynn's case close to our love shack.

Jan 2 2008

Brooklynn is doing really well. All she has is her oxygen, which will come off soon, her feeding tube until she can breast feed or bottle feed, and her heart monitor.

We are trying to transfer her up to Logan soon!

When can she come home?
As soon as she can keep her own body temperature, feed with a bottle or breastfeed without a feeding tube, and have seven days without heart apnia.

She just needs to grow!!

I'm doing really well. Just a little sore is all but always a little tired.

Shaun goes back to school monday and will come back to Brigham everynight to sleep after work.

We hope to transfer to Logan really soon!